The GFPD Patient Registry for Peroxisomal Disorders​

We are pleased to announce the launch of The GFPD Patient Registry for Peroxisomal Disorders!  The GFPD Patient Registry for Peroxisomal Disorders creates a platform for patients around the world to strengthen their voices and share information about peroxisomal disorders, a disease that causes cause symptoms such as hearing and vision loss, hypotonia, neurological issues, seizures, developmental delay, feeding issues, adrenal insufficiency, leukodystrophy, and liver, kidney, and bone disease. Peroxisomal disorders currently have no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve peroxisomal disorders patient care. Join now and let your data tell your story!

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