Contact Us
Sponsor
The Global Foundation for Peroxisomal Disorders
www.thegfpd.org
Registry Contact
Abby Pelster
patientregistry@thegfpd.org
843-796-8080
IRB
North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org
Social Media
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To sign up for the GFPD Newsletter, visit the GFPD website and scroll down to the sign-up box in the bottom right corner.
Visit the National Organization for Rare Disorders home page at rarediseases.org.